The mission of the European COPD Coalition is to raise awareness on COPD and to find ways to reduce the burden of the disease through collective action and advocacy, developing and implementing a comprehensive EU public health policy on COPD by being a key facilitator of COPD health policy initiatives at European and country level.
To deliver on its vision and mission, ECC develops:
- press releases, position statements. For instance, on the occasion of World COPD Day, we send to all of the Members of the European Parliament (MEPs), all key actors of DG Health at the European Commission and the EU press a position statement on what we believe should be done towards COPD at the EU level;
- briefings: explain what is COPD, how it can be treated and what actions the EU could adopt to tackle the disease – in the form of documents or videos (see our YouTube channel);
- raising awareness in the form of “advertising” (print, tv, radio): one video produced for CNBC (also available on our YouTube channel), full pages in the Parliament Magazine, in the (former) European Voice, and the sponsoring of the EUObserver Focus on Chronic Diseases,
- infographics that give valid information in a simple visual way;
Advocacy to ensure that the EU tackles COPD:
ECC is calling for a holistic EU framework to address COPD.
- ECC is meeting with key political leaders at EU level to optimally influence and guide public health policy forming;
- ECC is organising events at political fora;
- ECC makes recommendations and input in draft legislation – both at European and national level;
- ECC regularly informs the EU decision makers, in writing or orally, and invite them to our open meetings.
For instance: ECC ran a spirometry test within the headquarter building of the European Commission and checked the breathing capacity of the Commissioner for Health (then, Maltese Tonio Borg).
ECC briefed the new MEPs in July 2014 about COPD with a mailing, then held an exhibition in the Brussels European Parliament for World COPD Day and handed flyers to all passing by, and we concluded this by sending Best Wishes cards on the occasion of the New Year with information about COPD. As a result, two MEPs tabled parliamentary questions to the European Commission, quoting ECC in January 2015
ECC meets with all EU Member States health representatives to inform them of what actions they could take at national level to influence EU legislation, in relation with COPD – such as the Tobacco Products Directive.
ECC is developing a project which consists of collecting data on COPD, incidence, prevalence, per gender and age groups.
Subjects ECC is monitoring and/or actively working on:
- Prevention of COPD – determinants of health and risk factors
- Earlier detection
- Data on COPD
- Standards of care for COPD
- Future EU chronic disease framework
- Clinical care and research/advancement of treatment/living with COPD
- Clean air and pollution
- Patients’ rights and involvement in their care
Partnerships and collaboration:
ECC is a member of the European Chronic Disease Alliance (ECDA), the European Public Health Alliance (EPHA), and the Non Communicable Disease Alliance (NCDA – global). Although informal, ECC enjoys a fruitful collaboration with the European Respiratory Society (ERS), the European Lung Foundation (ELF) and the COPD Foundation (USA).
It also sometimes holds joint events with the European Federation of Allergy and Airways Diseases Patients Associations (EFA).